Friday, December 26, 2014

CoCo Bean Cox - Update and NEW Treatment

She started feeling really, really well. Then, with the snap of a finger - really, really bad. Seizures started back up and for the first time I could tell she didn't feel good. Met her awesome Vet early this past Saturday morning. She stayed at her home with her until she went to work on Monday. Doc met with the Neurologist and they discussed a chemo type drug and upped the seizure meds. This is/was our last hope, and by Monday eve she was feeling better. They overnighted the meds so she could take the 2 days of treatments before Christmas. Let me say, I didn't think we were going to make it to Christmas. I spoke in detail with her Doc on Monday because I really thought that it was time. We made a decision to try this. It was our last hope, and she was well. I had to. I couldn't think of not knowing.

The meds were overnighted on Monday. We waited all day until late Tuesday and realized they were lost, or stranded somewhere in Kansas. They didn't come on Wednesday. On Friday, they arrived late. She has had one dose of the 4 and is doing great. We have 3 more over the next 2 days.

I did get to bring her home on Tuesday. I decided that most important for her - and me, was to spend as much time with together as we could. She has felt really good, so on Christmas Eve, we spent the day resting and eating. Frozen peanut butter Kongs, a few green beans, bones, her freeze dried pumpkin, and her normal dinners. She had a great day.

Santa visited overnight and left all kinds of goodies in her stocking. She ate just about everything in it. We took a stroll, she shoo-d the birds, and walked a bit when she wasn't riding in her new 'wheels'. Today, after a good car ride and a bark or two at passers by, I 'brought the beach to her' - not the other way around. She is obviously too sick to travel, so we made due with a sand volley ball court here in town. She wasn't that impressed, but she played for a bit :) CoCo loves the beach more than anyplace else. I have just never seen her more happy then when she is there. I am trying to give her every experience I can. Just in case. The last few days have been so very special to me. I missed visiting with my family, but I needed to be here for her.

All of you have been so gracious. So caring and concerned. It's so heartwarming to hear from you all. People I have never met, people I haven't seen in 20 years, and all my closest friends and family. Our Vet's are amazing. Dr. Butner is just the best. Hands down. She cares for CoCo and I trust her. I don't trust anyone other than my Mom with her. CoCo LOVES her - and for those that know CoCo, I know you are quite jealous. Thank you all and Merry Christmas.

The Beach Comes to CoCo Bean

CoCo Bean and her stocking from Santa

Thursday, December 18, 2014

CoCo Bean Update - The Rollercoaster

Sorry for taking a bit to update. Between the holidays, the businesses, and the baby Bean - it's been a busy time. We are just entering the 6 week mark of CoCo being sick - or somewhere close to that. I am not sure where we left off. Possibly that CoCo was having seizure like spells.

The 'spells' as I call them, were originally diagnosed as a type of Vertigo. As the days have gone on, seizures have also developed. CoCo was having about one per week. If that. Last week - during the first part of the week I was the most hopeful I had been. She was happier, more energetic, WELL - if you will. I was so happy, I knew we were on the right meds and on track for recovery.

Then Thursday night happened. CoCo had been on her first walk in a month. She as so happy and so energetic and she just wanted to go and go. She was tired and ready for bed and so we went early. She likes to be in the bed by 7:30 or so and she expects me there, too. Anything she wants.

Woke up about 2:30am - she was waking me up... she had a seizure right then. I stayed up with her the rest of the night and she seemed to rest peacefully. The next morning I just knew something wasn't right. She didn't want to walk or stand. She did eat, from laying in her bed, and she pottied, but something just wasn't right. After I spoke with her specialist Vet, we decided to start her on seizure meds right away. A friend came to watch her while I went to the pharmacy. When I returned, she had a seizure. I gave her the new meds but she still didn't seem quite as she had been. She didn't want to cuddle, or be touched. NOT LIKE HER.

I stayed with her, right by her side. She had a seizure about 7pm. I gave her more seizure meds. I decided to stay on the couch to make sure we were more covered in case of a fall. By 7am she had about 5 more seizures. To the point by early morn they were coming as soon as they ended. I gave her seizure meds after almost every one. I called my Mom about 1am and told her I thought it was time to have to say good-bye and in that moment, I honestly thought it was. My Vet returned my call at 2am and we texted through the night. She met me at the clinic at 8am. She decided to keep her, sedate her deeply and let her stay with her for the rest of the weekend AT HER HOME so she could watch her more closely. She called this a 'brain reset' - and it worked.

By Sunday, CoCo was better than I have seen since she got sick. Santa brought her a new stroller since she wants to be outside, so she could get around better. We strolled a long way and she loved the sun. She even walked some and had a ball. The worst was behind us. She was going to get better. All this week she has gotten better and better.

Last night, she collapsed as I was giving her her seizure meds. I believe it was vertigo. She did the same for her lunch meds this afternoon. She might just be in a super deep sleep of sorts. I just haven't figured that part out, yet. This afternoon she has been herself. Having fun, playing and wanting to eat. ALL THE TIME.

It's a major roller coaster. Truly the meaning of one day at a time. This really is living in the moment. There is no option of otherwise. Today is a good day. Today is a good day.

Thank you to all my friends, CoCo's fans, and Mom's friends and fans for all the well wishes and comments. I have read everyone. I know I need to respond to many of you, but thank you all. I will try to answer them as I can. Bare with us :)

I have to say again - CoCo is not in pain, she is not suffering, and she is not aware she is sick. We are doing everything we can to keep it that way.

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CoCo Bean and Jen

Our AWESOME Sunday stroll.

Wednesday, December 3, 2014

GME - New Treatment Begins for Baby Bean

It's Wednesday and CoCo began the new treatment after bad results last week. Her first dose was yesterday. She is still on 5mg of prednisone and takes a half twice a day. They have added Atopica / Cyclosporin - 10mg once a day. The hope is to let this get into her delicate little system and in 2 weeks begin weening her off the steroids in hope this becomes her new, safer treatment.

Day one. She took this big capsule that tastes and smells bad with no problems first thing in the morning. Around midnight she had another seizure like spell. This one was as bad as the first. She couldn't have anymore steroids as she had recently had the evening dose. Being on such a high dose is dangerous in itself, to add to it would be awful.

I held her until it stopped and stayed up with her the rest of the night. Watched bad Christmas movies and infomercials. She slept peacefully the rest of the night. The rest of the day has been quite quiet. She hasn't felt too well. More tired than sick feeling. Slow moving and very cautious with her steps. Of course, part of that is from the brain inflammation.

I am told this new medication is for patients of organ transplants and it is given to them to keep the body from rejecting the new organ. It is now being said that CoCo's body - or immune system - is attacking her brain. We are now unable to be around other animals and are basically confined to the house. No more outside shoes and we will wash our hands a lot more for now. It's extremely important that she not get sick.

Dec. 6th will be one month that this has been going on. It has been some roller coaster. Major highs and major lows. Might have to hire someone to grocery shop and shower for me. It's getting more and more difficult to leave her. I am working from home and apart from my self owned businesses to my 'day job' - so to speak - there's a lot of juggling and little sleep. I would do it every single day for her to be well. Please continue the good thoughts. We really, really need them.

CoCo is still starving all the time from the medicine, would eat the couch if I let her, is in no pain, and isn't aware she is sick. She is cautious in her movements, but I think she is smart :)

I don't want to know of a time where she suffers and is in any pain. I cannot let that happen.

More soon.